Lymphedema, Adapt & Overcome | Juzo USA
January 2019

Lymphedema, Adapt & Overcome

Lindsey Sosovec

Lindsey Sosovec is a personal trainer and ski mountaineer. She has lymphedema in her lower limb, but that isn’t holding her back. Personal training, health and fitness are not just her job, they are her life, passion and purpose. By sharing her story, she hopes to show others what is possible.

No one warned me about lymphedema. No one told me it could happen to me. I honestly didn’t even know the definition of lymphedema…

While celebrating my birthday in the Guadalupe canyon outside of Tacate, Mexico, my right leg began to swell. Assuming I was bit by a bug, or had a strange reaction to something, I continued exploring, jumping off waterfalls and canyoneering. As I left the canyon for the U.S. border, my leg elevated on the dashboard of the rental van, I realized my next stop needed to be the emergency room.

Knowing my medical history (including cancer, a radical hysterectomy and lymph node removal) the ER doc cleared me to leave the hospital and cleared me to fly to Indonesia where my next adventure awaited. The doctor physically checked off a box that said I was negative for lymphedema and negative for blood clots. Off I went!

Over the next few days, I flew from San Diego, Salt Lake, Seattle, Shanghai, Bangkok and finally Denpesar. My professional photographer companion and I were on a mission to explore Bali, Java, Lombok and Flores. Our overall goal was an above and below water photo documentary of hiking, climbing and diving in Indonesia. Our final expedition would take us to the summit of Mt. Rinjani.

Upon arrival, my leg was at least double in size. I was afraid, confused, and half a world away from home. I hopped on the motorcycle anyway. The next few weeks, I motor scootered the islands of Bali and Lombok, hiked to beautiful waterfalls, snorkeled and scuba dove. I decided not to climb the volcano because my leg so swollen (actually, if I could have fit into my shoe, I might have attempted the climb).

From a small hut on the tiny island, I Skyped Huntsman Cancer Hospital and the nurse told me I should come home immediately and get re-checked. Many miles and dollars later, I went from Denpesar to Incheon to Seattle, and finally got to Salt Lake City. It was an uncomfortable and scary journey.

It was almost three months from that journey before my decongestion phase was over. Decongestion was hard, hopeless and at times quite depressing. Fear of the unknown and of a “lifelong” condition haunted me.

I was full of hope finally being “free” of my foam and bandages. With the help of my PT and some lymphedema experts, I tested and retested compression garments until I found one that would comfortably contain me and my active lifestyle. Through trial and error, I am able to continue my life as an adventurer, athlete and personal trainer. It isn’t easy, some days are better than others, but I am managing my lymphedema!

My recipe for success: exercise, wear my compression sock, daily MLD (manual lymph drainage), stand – don’t sit, and regularly check in with my PT for measurements and professional MLD.

I haven’t let my diagnosis be my prognosis – and I hope you aren’t either. Together, we can adapt and overcome. I am here to help, whether you need inspiration, support or fitness ideas. Follow me on Instagram, @sosovecl, or leave me a comment below.

Frances commented on Feb 10, 2021

LOVE this story of your life! Your precious life! I have worked with people that need compression products since 2001, you are an inspiration to all of these people! THANK YOU for getting the word out! JUZO is a GREAT BRAND, they have wonderful products that improve quality of life, their compression garments give people the ability to LIVE AN ENJOY their life! The youngest customer I have dealt with personally was 9 years old when she started her compression garment journey! KEEP UP THE GREAT WORK! YOU ARE AN INSPIRATION!!!

Nanci commented on Jan 01, 2020

I'm unexpectably in tears after reading your story here...there are many similarities to the story of my lymphedema diagnosis and experience which started spontaneously in 2015 when I was in my late 50's. I do not have a health history of cancer/related conditions and it is still unknown why I developed it in my right foot/leg. I'm an active outdoor mountain and desert hiker/mountain biker from Santa Fe and daily aerobic movement and 24/7 compression has been my salvation. Thank you for sharing your inspirational story - I wish you an adventurous and healthy 2020! In appreciation - Nanci in Santa Fe

Lisa Ryan commented on Jul 23, 2019

Lindsey, it was so great meeting you this weekend and I am sorry you have lymphedema but so happy to find a friend (sister) to share this journey with, talk about products and what works and is worth trying. All my best to you and your adventureous lifestyle.

Jenniffer W. commented on Jan 15, 2019

Truly amazing and inspirational...thank you for sharing your story.

Dave Murchie (Brisbane, Australia) commented on Jan 09, 2019

Inspirational.......can relate to Lindsey's condition, having had to live with that nasty L word (myself) due to a nasty injury to my right leg since it happened back 1987. I always think, there are so many people out there that are so much worse than me (and I really, truly mean that), this gives me (and possibly others) the strength and courage to go on. Kindest regards Dave

Francine commented on Jan 08, 2019

well-written and informative article, keep up the great work and activity

Jane Smith commented on Jan 08, 2019

Lindsey you are an inspiration! I have followed your life for years and you are one of the most uplifting daredevils I have ever know. Your enthusiasm for life is contagious. I love your courageousness.

Brian Nelson commented on Jan 08, 2019

I Love you girl!!! I love this!!!!

Delia Sherman commented on Jan 08, 2019

I have lympidema in my right arm ,had radical mastectomy 1975 no problem until a couple years ago ,hubby had back surgery had to pull him off the bed after that it has swelled and 2times I had cellulitis in it


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